Science|Business
Policy Analysis:
Published: 05 January 2012
Karolinska appeals data protection ruling on LifeGene project

Press release


The Data Inspection Board has audited the processing of data in the LifeGene project, which has been gathering information voluntarily provided by participants about their health and lifestyles. The project will help to improve diagnostics, treatments and preventative recommendations.

However, the Data Inspection Board has ruled that the gathering of personal information for future research is in breach of the Personal Data Act and that LifeGene is to cease the collection and processing of...

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